Zvakafungwa nemumwe chiremba inyaya yakareruka yeeczema yevakuru muna Zvita 2008 zvakatanga mwedzi misere yekushanya kwachiremba, kuongororwa ropa, x-ray, scans, biopsies, mapiritsi, potion uye mafuta ekuzora. Izvi zvakazoita kuti kuongororwa kwe lymphoma. Uye kwete chero lymphoma asi T-cell rakapfuma B-sero, 'grey' diki-chikamu chekupararira hombe B-cell, isiri Hodgkin lymphoma, nhanho 4.
Zviratidzo zvangu zvakatanga muna Mbudzi 2008 pandakadzoka kumba ndichibva kuchikoro. Ndakanga ndave nepundu pamutumbi wangu uyo mumwe chiremba akafunga kuti fungal. Mazuva mashomanana gare gare, mumwe chiremba akaongorora Pityriasis Rosea ndokundiisa paprednisone. Mapundu acho akaramba achitowedzera ndikabva ndaendeswa kuna dermatologist. Akawedzera madosi angu eprednisone ayo akaibvisa kuitira kuti pakasvika zuva reKisimusi ndaitaridzika zvakanaka uye nehusiku hutsva hwemakore, (mukoma wangu wechimakumi maviri nerimwe) ganda rangu rakanga rava kutodzokera kune zvakajairika.
Izvi hazvina kutora nguva yakareba uye pakupera kwaNdira kuputika kwadzoka.
Pakati paFebruary makumbo angu ezasi akatanga kurwadza kunge arikutsva. Vakabuda vakakuvara vachitarisa mapundu ayo, mushure mekuongororwa kwezvirwere zvakawanda, akasimbisa Erythema Nodosum. Panguva imwecheteyo, Chiremba wangu mutsva akaraira ganda biopsy sezvo rash yakanga yadzoka uye ichiwedzera. Mibairo kubva pane iyi yakaratidza kurumwa nedandemutande kana kuita kwezvinodhaka kana zvaive zvechokwadi. Ichi chirwere chakagadziriswa mushure memamwe mavhiki mashoma paprednisone.
Ndakadzokera kuna dermatologist kutanga kwaKurume kuti ndinotariswa. Rash rakanga richiripo uye risingadairi chero mishonga. Nekuti yakaratidzwa munharaunda yangu yemukati megokora uye kuseri kwemabvi angu, uye ndaiva nenhoroondo yeama yehudiki, chiremba uyu akachengeta ongororo yake yepakutanga yeeczema yevakuru kunyangwe ndakanga, panguva ino, kuputika kumeso, mutsipa, chipfuva, musana. , dumbu, chidya chepamusoro uye chidya. Ndainge ndakaputirwa mukati mayo uye yakanga ichitosvota.
Panguva iyi ganda rangu rainge rashata zvekuti baba vainge vandisunga maoko nemabhandeji ndisati ndarara kuti vandimise. Mukupera kwaMbudzi, mapundu aiva pamaoko angu akanga akashata zvokuti waigona kunzwa kuti kupisa kuchibva paari netsoka. Ndakaendeswa kuchipatara vanachiremba vakandiudza kuti yaingova eczema, kuti yakanga isina utachiona uye kuti ndiwane antihistamine. Mangwana acho ndainge ndadzokera kwaChiremba wangu uyo ainzwa kunhuwa utachiona ndisati ndapedza kubvisa mabhandeji.
Iyo Erythema Nodosum yakadzoka kutanga kwaApril. Mushure memavhiki maviri ndakanga ndadzokera kumadhokotera apo mhamha vaive vanetsekana nechitarisiko chemaziso angu. Rimwe ziso rakanga rakazvimba uye raiita sendainge ndatsvetwa nemumvuri weziso rebrown pameso ese. Imwe steroid cream yakagadzirisa izvi pasi.
Kwapera mwedzi ndakanga ndadzokera kwaChiremba ndine chirwere muziso chainzi Phlyctenular Conjunctivitis. Madonhwe eSteroid akazogadzirisa izvi.
Iyo CT scan yakaratidza kuti inogoneka Sarcoidosis asi radiographer yaisazobvisa lymphoma.
A yakanaka tsono biopsy yakarairwa. Mazuva maviri gare gare, GP wedu akafona achitaura kuti lymphoma yakasimbiswa. Pakutanga ndakakatyamara uye ndakashatirwa nekuongororwa uye ndakachema nezvazvo, ini nemhuri yangu takazorodzwa chaizvo kuti ndivhenekwe uye nekuziva kuti yairapika uye inorapika.
Ndakaendeswa kuRBWH ndichichengetwa nachiremba weropa Dr Kirk Morris.
Dr Morris vakaraira bvunzo dzakawanda dzakadai sekushanda kwemoyo, PET scan, Bone Marrow uye Lung function iyo yakaitwa svondo rinotevera. PET yakaratidza kuti lymphatic system yangu yakanga yakazara nekenza.
Dai muviri wangu waiziva kuti hurwere hwainge hwatonhongwa sezvo pakapera bvunzo idzi, muviri wangu wainge wavhara. Chiono changu chakanga chisina kumira zvakanaka, kutaura kwangu kwakanga kusina kujeka uye ndangariro dzangu dzakanga dzaenda. Ndakabva ndangopinzwa muchipatara ndikaitwa MRI. Ndakagara muchipatara for 10 days ivo vakaitawo imwe lymph node biopsy, ndakaona dermo yavo nemaziso madoctors ndikamirira kurapwa kwavaizondiisa pagomarara rangu.
Kusununguka kwangu pakupedzisira pakuongororwa kwakaenderera mberi mumwedzi yangu yese yekurapwa uye ndaigara ndichisvika kuchipatara, kungave kwekuongororwa kana chemo, ndichinyemwerera pachiso changu. Vanamukoti vaiwanzotaura nezvekufara kwandaiita uye vainetseka kuti ndakanga ndisiri kutsungirira asi kuti ndiratidze ushingi.
Chop-R yaive chemo yesarudzo. Ndakanga ndine chirwere changu chekutanga musi waJuly 30 uye shure kwemazuva maviri mushure mezvo kusvika munaOctober 8. A CT uye imwe PET yakarayirwa ndisati ndaona Dr Morris zvakare pakupera kwaOctober. Hapana kana mumwe wedu akashamisika paakandiudza kuti gomarara rakanga richiripo uye kuti ndaizoda imwe round kemo, panguva ino ESHAP. Akataura zvakare kuti stem cell transplant yaive pamakadhi.
Nekuti chemo iyi yakaunzwa nekumisikidzwa kwemaawa makumi maviri nemaviri kwemazuva mashanu nekuzorora kwemazuva gumi nemana, ndakaisa mutsara wePIC muruwoko rwangu rwekuruboshwe. Ndakaitawo zvakanakisa kuve ndakasununguka kuMelbourne Cup uye ndakaenda kumafaro ndisati ndatanga ESHAP. Izvi zvakadzokororwa katatu, zvichipera nguva yeKrisimasi isati yasvika. Munguva iyi ndaiita kuti ropa riitwe nguva nenguva uye ndakabvumidzwa muna Mbudzi kuti vagokohwa masero angu ekuti ndiisirwe.
Munguva yese iyi ganda rangu rakaramba rakafanana - crappy. Ruoko rwangu rwekuruboshwe rwakazvimba sezvo ndaive ndaita magwamba eropa paPIC saka ndaidzokera kuchipatara zuva nezuva kunotorwa ropa nekuiswa mishonga inoderedza ropa uyezve ndakaisirwa maplatelet. Iyo PIC yakabviswa mushure meKisimusi uye ini ndakanyanya kuita izvi kwaive kuenda kumahombekombe kwemazuva akati wandei. (Iwe haugone kuwana PIC yakanyorova.)
Ndira 2010 uye ini ndakanga ndadzokera kuchipatara kuti ndidzidze nezve autologous bone marrow transplant (yangu stem masero), uye kune dzakasiyana siyana bvunzo dzekutanga uye kuisa mutsara weHickman.
Kwevhiki vakandipomba yakazara nemishonga yechemo kuti vauraye mwongo wangu. Mwongo kana stem cell transplant kwakafanana nekurovera hard drive yekombuta nekuivaka patsva. Kusimwa kwangu kwakaitika mushure mekudya kwemasikati uye kwakatora maminetsi gumi nemashanu. Vakadzosera 15ml yemasero mandiri. Ndakanzwa zvinoshamisa mushure meizvi uye ndakamuka uye nezve nekukurumidza.
Asi mukomana, ndakabondera here mazuva mashoma apfuura. Ndakanzwa kusemeswa, ndaiva nemaronda mumuromo nepahuro, ndakanga ndisingadyi uye mazuva mashoma ndabva kuisirwa, ndairwadziwa nemarwadzo mudumbu mangu. CT yakarairwa asi hapana chakabuda. Marwadzo akaenderera mberi ndakabva ndaiswa pacocktail yemadrugs kuti ndisununguke. Uye zvakadaro hapana zororo. Ndaive ndarongedza mabhegi angu kuti ndiende kumba mushure memavhiki matatu asi ndaifanira kudzikisirwa. Kwete chete kuti ndakanga ndisingabvumirwi kumba, asi ndakamhanyiswa kunovhiyiwa musi waKurume 1 sezvo vakaziva kuti dumbu rangu rakanga rakazara urwa. Nhau dzakanaka chete panguva iyi yaive stem masero akange atora zvakanaka uye mazuva gumi mushure mekutama ganda rangu rakazotanga kupora.
Nekudaro, ndakapedzisira nekupemberera zuva rangu rekuzvarwa rechigumi nemapfumbamwe muICU uye ndisingafungidzire boka remabharumu randakatengerwa naAnnie wangu.
Mushure mevhiki ndiri pacocktail yemishonga yemarwadzo (akawanda ayo ane kukosha kwemumugwagwa) uye yakakura spectrum antibiotics, vanachiremba muICU vakazopedzisira vave nezita rebug rakanga randirwarisa mushure mekuisirwa - mycoplasma hominis. Hapana chandinorangarira panguva iyi sezvo ndairwara zvakanyanya uye ndakatadza kaviri - mapapu angu uye turakiti reGI.
Masvondo matatu gare gare uye zviuru zvemadhora zvekuongororwa, zvinodhaka, zvinodhaka nezvimwe zvinodhaka ndakaburitswa muICU ndokudzokera muwadhi mandakagara kwevhiki imwe chete. Mamiriro angu epfungwa mushure mekupedza mavhiki masere muchipatara pandakaudzwa kuti 8 yakanga isiri yakanaka. Ndakazoburitswa muchipatara nguva yeEaster ndichivimbiswa kuti ndaizoenda kunoongororwa kaviri pasvondo. Mwedzi ndabuda muchipatara uye ndakapedzisira ndave nechirwere chakaipa cheshingles chakatora mavhiki matatu.
Kubva pandakatanga kemo kusvika mushure meICU, ndakarasikirwa nevhudzi refu rebrown katatu uye uremu hwangu hwakabva pa55kg kuenda pamusoro pe85kg. Muviri wangu wakafukidzwa nemavanga kubva kubiopsies, kuvhiyiwa, mabhegi emvura, mitsetse yepakati, uye kuongororwa ropa kwakawanda asi ini handina gomarara uye ndave ikozvino kubva pandakaisirwa muna Kukadzi 2010.
Ndinotenda kuvashandi veRBWH wadhi 5C, haematology, neICU nekundichengeta zvakanaka kudai nemhuri yangu.
Munguva iyi, ndakatumwawo kunoona chiremba mukuru. Ndakanga ndava dambanemazwi kwaari. Akarayira kuongororwa ropa 33 mukushanya katatu kwaakatora kuti mazinga angu eACE (Angiotension Converting Enzyme) akanga akakwirira. My IgE mazinga aivewo akakwira zvisingaite, akagara pa77 600, saka akatarisa Hyper-IGE syndrome. Sezvo mazinga angu eACE aichinja akaraira bvunzo iyi zvakare, achindiudza kuti CT scan yaizorairwa kana bvunzo iyi ikadzoka yakakwira. Ini nemhuri yangu hatina kumbofara zvakadaro kugamuchira runhare kubva kuchipatara chachiremba kuti pane chimwe chinhu chakaipa. Zvaireva kuti tainge tave munzira kuenda kunoongororwa kuti chii chaikonzeresa mashura aya aiitika mumuviri wangu.
